Muscular dystrophy affects 50,000 Americans. The MDA collected $186 million last year - $3720 per person with MD.
Cystic fibrosis affects 30,000 Americans. The cystic fibrois foundation collected $143 million last year - $4766 per person with cystic fibrosis.
Polycystic kidney disease affects 600,000 Americans. The PKD foundation collected $11 million last year - $18 per person with PKD.
I guess that's part of why I feel so strongly about spreading the word about PKD.
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Team Teddy Bear
Team Teddy Bear is the team our family has formed for the annual Walk for PKD. I initially created this blog as a way to track our fundraising progress, but have since expanded it to share our experience with Polycystic Kidney Disease and just about anything else going on in our lives. First time visitors may wish to read Our PKD Story which relates our personal experience with PKD. Please do feel free to leave a comment on anything - even just a quick hello letting us know you stopped by.
Our PKD Story
Total Money Raised to fight PKD
2011: $2517.80 and counting!
2010: $5912.46
2009: $4405.00
2008: $4435.90
2007: $4300.00
2006: $2000.00+
2010: $5912.46
2009: $4405.00
2008: $4435.90
2007: $4300.00
2006: $2000.00+
2010 Team Picture
Team Teddy Bear
Other PKD related blogs
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460) Annual Update - *February 10, 2020* *Monday* *Update:* Since our last update on the 10th anniversary of my transplant, a number of events have transpired to make the last ...4 years ago
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My Hemodiafiltration Experience at The Dialysis Co in Cebu City - I have been on hemodialysis in Cebu for more or less 7 years already and in the course of dialysis, I have been to different dialysis centers and have expe...5 years ago
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New content coming soon! I'm back! - Having been ill for so long with PKD, 4 months ago my life changed as I received a kidney transplant! Now I can get back to this blog. See you soon!5 years ago
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I Can't Be This Old ... - So, at the moment, I feel so very old. It's probably whatever virus has settled in my chest that is making me bone tired. But it's also because my l...5 years ago
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Where am I? Check out Twitter - By Bill Peckham I am busy being retired and getting fit. Coming up on the start of my 29th year using hemodialysis and I have recommitted to seeing how far...6 years ago
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Easter Everyday - Some weeks go by and I don't spend much time reflecting on my transplant. Life goes on a a seemingly normal pace. But these weeks are rare. Usually the tr...8 years ago
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Hydrocholorizaytoiuwoiet2tkadn and super powers - I'm pretty sure the title of my post is the name of my new medicine. Or, you know, pretty close. It's a very long name for a very tiny pill. Put simply, ...9 years ago
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To Zen, Or Not To Zen - Yesterday I was trying to make an appointment with my new acupuncturist for after work, and he asked me what was the earliest I could make it without hurry...10 years ago
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too much - There is way too much to post since my last post over six months ago!!!!! And there is too much going on in my life! So I will make a list of things that h...10 years ago
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UK PKD Article - *Family sets British transplant record with ELEVEN members getting new kidneys as result of genetic conditionEleven members of a UK family suffer from Pol...11 years ago
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Polycystic Kidney Disease Patients: Vulnerability - In the area of social discourse, one of the main objectives is to maintain one’s dignity, one’s self-respect. We don’t like to be made fools of. We will do...12 years ago
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It really is all about me, isn't it???? - So I have debated and debated and debated and debated and even debated some more about whether to continue this blog or not... I even started this post on ...12 years ago
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Neglect - To my faithful billion followers I must offer my humble apologies. It has been far to long since I last updated. I will offer my petty excuses here. Th...13 years ago
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Life Insurance Premium Increased - I have often wondered what was going to happen the next time I applied for health or life insurance, and I just found out. I had a life insurance policy wi...13 years ago
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Update #21 - Things are great! - It's been a few weeks since our last update. Needless to say, much has happened since then. Karen is home and doing great! So well, that the doctors only...13 years ago
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Stranger from Afar - Hello hello. I'm not even going to get into how long it's been since I've written. I was sitting in class the other day, and I just got very overwhelmed ...13 years ago
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Missing the Blog - I miss this blog. What's happening lately? Well, I celebrated my 3-year kidney anniversary in December 2010 so that's good. I'm still feeling very good ove...13 years ago
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April 2010 - Don't know if I can continue this blog, but think I will try and salvage it. My poor mind just doesn't want to function on anything. This week has been rat...14 years ago
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Back to Normal? - That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruc...14 years ago
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Again........!!!!!!! then the good news. - Hallo everybody, it's me again. I only talk to you every now and then but to me it is better to write one long letter than write everyday a little. The las...14 years ago
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Living Kidney Donor Blogs
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Site Closing :( - It is with regret that this website will be shutting down on 1st January 2025. The cost of hosting etc has just skyrocketed and no longer is affordable. ...1 week ago
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Estimating time to complete Sudoku puzzles - The start of a Sudoku puzzle with 27 cells filled in, leaving 54 remaining cells. The remaining cells show the 190 possible symbols after removing unavaila...2 weeks ago
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Middle Leg of the Relay - In high school I ran track. I wasn’t very good and it wasn’t very memorable – for me or anyone who watched. Coach always stuck me in the middle of the rela...7 years ago
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4 years and counting - I realized today that I hadn't posted on our 4 year anniversary. It's not that I didn't mean to, or the importance in celebrating has lessened in any way, ...9 years ago
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Five Years Later - What comes next for living donors? - I cannot believe how the time has flown since I donated April 26, 2010. It just doesn't seem possible that it's been that long (I'm in denial from a...9 years ago
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Here’s a new twist - So in Ireland, about 100 living donors and their recipients are sitting around waiting to have transplant surgery scheduled because of a lack of availabili...11 years ago
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one year later - I woke up this morning with a distinct awareness of all the wonderful things I have in my life for which I should be – and am – thankful. Today has been un...12 years ago
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More alphabet soup and painting a Poopcaso! - Howdy folks. Probably by now you've been thinking "Yeah that ole kidney bean has probably chickened out". No, the process is just slow. I cut myself shavin...13 years ago
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A NEW Twist to Kidney Paired Donations - "Perfect Matches" - Kidney Paired Donations, (KPD) A.K.A Paired Exchanges or swaps have become very popular. A KPD is when the donors of two or more incompatible donor/recipie...13 years ago
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big news - well, i havent written in so long... my life has been a little hectic :) in the midst of all this, i have found out that my boyfriend and i are expecting a...15 years ago
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2 comments:
Bob, this is stunning, and precisely the message that I've been pushing, but without the math behind it. Thanks for doing the calculations. If you don't mind, I'm going to link to you on my blog -- thanks for putting us up on your site, as well! When I get a little breathing room, I look forward to catching up with your blog.
Thanks for linking, Ruth. Hope the cookie sales are continuing to go well!
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