Muscular dystrophy affects 50,000 Americans. The MDA collected $186 million last year - $3720 per person with MD.
Cystic fibrosis affects 30,000 Americans. The cystic fibrois foundation collected $143 million last year - $4766 per person with cystic fibrosis.
Polycystic kidney disease affects 600,000 Americans. The PKD foundation collected $11 million last year - $18 per person with PKD.
I guess that's part of why I feel so strongly about spreading the word about PKD.
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Team Teddy Bear
Team Teddy Bear is the team our family has formed for the annual Walk for PKD. I initially created this blog as a way to track our fundraising progress, but have since expanded it to share our experience with Polycystic Kidney Disease and just about anything else going on in our lives. First time visitors may wish to read Our PKD Story which relates our personal experience with PKD. Please do feel free to leave a comment on anything - even just a quick hello letting us know you stopped by.
Our PKD Story
Total Money Raised to fight PKD
2011: $2517.80 and counting!
2010: $5912.46
2009: $4405.00
2008: $4435.90
2007: $4300.00
2006: $2000.00+
2010: $5912.46
2009: $4405.00
2008: $4435.90
2007: $4300.00
2006: $2000.00+
2010 Team Picture
Team Teddy Bear
Other PKD related blogs
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From Despair to Hope: The Dream and Journey to Free Dialysis and a Brighter Future - More than 40 years ago, my mom received the devastating news that she needed dialysis to stay alive. At that time, dialysis was so expensive that she chose...2 months ago
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473) PKD Day, September 4, 2022 - 474) PKD Day - 2022 *March 28, 2021* *Sunday* *Happy Belated Birthday: *We missed Mordechai's birthday again this year! It was 12 years ago on March 9...2 years ago
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Since by Man Came Death - A Podcast Text - In the Fall of 2020 choir members were asked to submit texts for a Podcast to tell how a specific piece of music, hymn or anthem influenced our spiritua...2 years ago
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The Phone Call No One Wants ... - It was around 8:45 on a Sunday morning. I'd been up for about 15 minutes ... shuffling through the house. Stoney is always up for hours before me on...5 years ago
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So wait... there's a cure? - Hello internet, it's 2018! I can't believe I remembered my password. Here I am, some 7 years later. I'm 29 and living in New Orleans and am a Montessori t...6 years ago
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Where am I? Check out Twitter - By Bill Peckham I am busy being retired and getting fit. Coming up on the start of my 29th year using hemodialysis and I have recommitted to seeing how far...6 years ago
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What I Wish I Had Said - *(I suspect no one will read this post. But I'll know it's here.)* Over the years I have from time to time idly wondered whether I should shutter this blo...6 years ago
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too much - There is way too much to post since my last post over six months ago!!!!! And there is too much going on in my life! So I will make a list of things that h...10 years ago
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UK PKD Article - *Family sets British transplant record with ELEVEN members getting new kidneys as result of genetic conditionEleven members of a UK family suffer from Pol...10 years ago
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Polycystic Kidney Disease Patients: Vulnerability - In the area of social discourse, one of the main objectives is to maintain one’s dignity, one’s self-respect. We don’t like to be made fools of. We will do...12 years ago
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It really is all about me, isn't it???? - So I have debated and debated and debated and debated and even debated some more about whether to continue this blog or not... I even started this post on ...12 years ago
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Life Insurance Premium Increased - I have often wondered what was going to happen the next time I applied for health or life insurance, and I just found out. I had a life insurance policy wi...13 years ago
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Update #21 - Things are great! - It's been a few weeks since our last update. Needless to say, much has happened since then. Karen is home and doing great! So well, that the doctors only...13 years ago
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Missing the Blog - I miss this blog. What's happening lately? Well, I celebrated my 3-year kidney anniversary in December 2010 so that's good. I'm still feeling very good ove...13 years ago
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April 2010 - Don't know if I can continue this blog, but think I will try and salvage it. My poor mind just doesn't want to function on anything. This week has been rat...14 years ago
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Back to Normal? - That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruc...14 years ago
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Again........!!!!!!! then the good news. - Hallo everybody, it's me again. I only talk to you every now and then but to me it is better to write one long letter than write everyday a little. The las...14 years ago
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Living Kidney Donor Blogs
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Choosing the bus driver in Raccoon City - Welcome aboard the Raccoon City bus. Image from Tomato Pixels by George Taniwaki Imagine you are a hard working resident of Raccoon City. After a hard day ...1 day ago
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So grateful for the NHS - We often take the NHS for granted. Quick to moan when things go wrong, such as long waiting lists. Okay the NHS is not perfect (what medical system is). ...1 month ago
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Switchbacks - Twenty-four years ago, I hiked the Grand Canyon. One day down, a day hiking on the floor, and a different, longer trail coming up. I trained just enough to...6 months ago
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5 Years - What strikes me most about being 5 years post transplant is how little the story is mine anymore. As soon as I was a match for Dave the kidney was his - i...8 years ago
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Here’s a new twist - So in Ireland, about 100 living donors and their recipients are sitting around waiting to have transplant surgery scheduled because of a lack of availabili...11 years ago
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one year later - I woke up this morning with a distinct awareness of all the wonderful things I have in my life for which I should be – and am – thankful. Today has been un...12 years ago
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More alphabet soup and painting a Poopcaso! - Howdy folks. Probably by now you've been thinking "Yeah that ole kidney bean has probably chickened out". No, the process is just slow. I cut myself shavin...13 years ago
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A NEW Twist to Kidney Paired Donations - "Perfect Matches" - Kidney Paired Donations, (KPD) A.K.A Paired Exchanges or swaps have become very popular. A KPD is when the donors of two or more incompatible donor/recipie...13 years ago
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big news - well, i havent written in so long... my life has been a little hectic :) in the midst of all this, i have found out that my boyfriend and i are expecting a...15 years ago
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2 comments:
Bob, this is stunning, and precisely the message that I've been pushing, but without the math behind it. Thanks for doing the calculations. If you don't mind, I'm going to link to you on my blog -- thanks for putting us up on your site, as well! When I get a little breathing room, I look forward to catching up with your blog.
Thanks for linking, Ruth. Hope the cookie sales are continuing to go well!
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