Ten years ago today, Jeanne received her kidney transplant. Somehow, it seems fitting that on a holiday where we take time to remember those that sacrificed for our country, I also get to remember the sacrifice that Susie made by donating her kidney to Jeanne.
I still remember that day rather vividly: rushing out very early to be able to see them off to surgery, only to end up having the surgeries delayed until almost noontime; trying my best to keep myself busy in the afternoon by leaving the hospital for a few hours; later in the afternoon, back at the hospital, pacing, pacing and more pacing waiting for Jeanne and Susie to finally get out of surgery; then finally seeing Jeanne back at the room and being amazed at how good she looked. It definitely was one of the longest days of my life. But looking back now, I think I need to count it among one of the best days as well.
Happy Anniversary Jeanne!
ReplyDeleteTo all PKD patients,
ReplyDeleteI know that you are suffering from PKD. I am writing to you because that I am suffering from “PKD” too. I am not a PKD patient, none of my family member is. I am a PKD researcher. In the work, I found out that some of the important data which were published and used by the laboratory to apply for NIH（National Institutes of Health）grants were falsified and fabricated. I presented the evidences and made complaints to the principle investigator of the laboratory and the officials in the institute. However, I was retaliated against for my whistle blowing and was asked to leave my position. If the research misconduct is covered up, millions dollars of taxpayers' money could be in danger of being wasted, the health of patients like you could be in danger of unprotected, and the truth would be buried by the lies. The adverse impact to PKD family is obvious.
I found the falsification and fabrication on PKD research were extensively spreading in the field. It is ridiculous and astonishing. Among all the false papers published, the cilium story is the most egregious one. I have plenty of evidences and reasons to say that most of the papers about the PKD and cilium were fake.
Meanwhile, I would like to say that it is like emperor’s new clothes, only kid like me (in Science) spoke up.
Is it hard to believe? Contact me for details, if you are interested.
In the end, I sincerely wish you and all PKD patients would obtain real cure sooner.
Linc
lincbacon@yahoo.com