I got an action alert from the PKD Foundation yesterday. The Senate apparantly will finally be getting around to debating the Genetic Information Discrimination Act this week, nearly one year after the bill was passed by the house. For more information, see the PKD Foundation web site. The science of genetics has made some amazing advances in recent decades. However, without sufficient legislation in place to protect against genetic discrimination, one runs the danger of putting themselves in a worse position knowing they definitively have a disease like PKD than if they didn't know.
Unfortunately, I've checked a couple of congressional web sites and can't find any mention of it being on the agenda. If someone finds some information on GINA being discussed in the Senate, please leave me a comment pointing me to it.
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