Scheduled topics include: ADPKD, ARPKD, Research News, PKD & Your Diet, and Employment and Insurance Issues for People with Genetic Illnesses
For more info, see the Hudson Valley PKD Chapter Home page or view the event flyer.
Team Teddy Bear is the team our family has formed for the annual Walk for PKD. I initially created this blog as a way to track our fundraising progress, but have since expanded it to share our experience with Polycystic Kidney Disease and just about anything else going on in our lives. First time visitors may wish to read Our PKD Story which relates our personal experience with PKD. Please do feel free to leave a comment on anything - even just a quick hello letting us know you stopped by.
Saturday, January 19, 2008
NYC Metropolitan Area ADPKD/ARPKD Education & Awareness Seminar
The NYC Metropolitan Area ADPKD/ARPKD Education & Awareness Seminar will be held on Saturday, March 15 at the NYU Medical Center 550 First Avenue, between 30th and 33rd streets in Manhattan. The program runs from 10:00 a.m to 3:00 p.m. The cost is $10/person and includes lunch.
For more info, see the Hudson Valley PKD Chapter Home page or view the event flyer.
For more info, see the Hudson Valley PKD Chapter Home page or view the event flyer.
Hi Bob,
ReplyDeleteI just wanted to thank you for all the help, info and support you provide through your blog and your comments on those of others.
Like you, I do not have PKD, but my husband and teenage daughter were both diagnosed within the past year.
My husband is 49 and recently started in the Tolvaptan study in NY. Thankfully, both he and my daughter are doing well and their lab work is all normal. (My daughter was diagnosed while having an MRI for an unrelated medical problem, and my husband was diagnosed several months later.)
Anyway, it gives me strength to see that you and your beautiful family are doing well and enjoying life.
Thanks again for blogging...you reach, and help, more people than you realize.
Sincerely,
Marlene
Marlene,
ReplyDeleteThanks for the kind words. I hope that things continue to go well for your family. I'm very interested in the Tolvaptan study. I'd very much welcome any updates you'd be willing to provide as the study moves forward.